It Is Time


It is time to change who I am, with the leaves that fall and change the trees

to form a new white trunk of bark barren of life until Spring

It is time to change who you see, with the skin and the tone of my voice

to form a quick perspective of a friendship gone away to a Fling

A time for all to witness the absence of birds on the sill

to rest in the places warmer than this in a nest so short on rent

A time to bring the white winter snow around to hide the being

to watch from inside and within it I hide, emotions around me spent

 

A Winter Soul

 

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A page from my book of thoughts


Ten years ago I began an adventure.  A writing.  A book.  Below is the first page of that book…

Jordan "Jody" Esposito

Tears of Jody

I’ve wanted to do this for years.  Maybe a decade.  Why? To share a person with the world.  The story is not unlike thousands of others.  Thousands of parents each year feel what I feel, cry the tears I cry and dream the dreams I will continue dreaming.  Yet, I’ve never really thought of all the other parents during the past fourteen years.  I can tell you I have thought of all the other millions of parents out there with no “Jody’s” in their life.

Waiting

I sit here laughing and then almost crying at just how many times I’ve waited in the last fourteen years.  Waiting has seemed to follow me where ever I go.  Not your typical waiting line at the grocery store or the gas station.  No.  Waiting for an end, death, a beginning.  Waiting for surgery, for healing and for the next surgery.

I now believe eighteen is too young to get married and nineteen is too young to be pregnant.  Twenty is too young to be a parent.  I should have waited.  Waited so that I could handle the turn in my life that would come all too soon.  I can remember waiting for Jody to be born.  A pretty normal pregnancy, though she kept me waiting.  I walked, rode a bike, even pressed my belly a little to encourage her to begin her life outside of me.  When she finally arrived, it was after almost two days of induced labor in which doctors finally gave up.  Cesarean was my destiny.  A life unlike no other was hers.

Looking back, I want to hate my Obgyn.  Three ultrasounds and no detections.  He even spoke of a spine that wasnt quite straight, but overall she looked good.  I do hate him.  Or do I love him?  If I knew then what I know now, could I have terminated my Jody?  Most of me says yes.  The rest, which normally comes with her daily smile of smiles, says emphatically no.

Having a tremendous fear of pain, general anesthesia was my choice for delivery.  When I woke up two hours after birth, I found out my first child was going to leave me almost as fast as I could touch her.  Why? Her father on one side and the doctor on the other tried to talk to me.  I lay there looking up from my bed in a dope filled daze as they explained just that.  Why.

I had waited over nine very long months to greet my first-born and the privilege was being taken away from me.  I would not see my baby.  She was being shuttled by helicopter three hours away to Shands Hospital where she would have her first brain and back surgery.  I would wait in a hospital, childless, alone and devastated.  I had waited and failed.  Both would not be my last.  It would be seven long days before I would get to see, who you will get to know as Jody.

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The First Lecture…


If you have read me, you know that most of what I write is about experiences that I have had, good or bad in my life.  Most circle my family and friends and this piece wont be much different in most ways.  It will be different in some, however as I am not speaking of experience this time.  I am writing about new things that I have learned.  First’s if you will.

My son, Justin was accepted into a Summer College program through Cornell University for those who will be entering the medical field in college.  So for the past week, I have prepared for the soon departure of him to a new place for him and me.  We spent time doing and preparing and going through many firsts.

Laundry was the most comical off all for certain.  Justin had only experienced the clean smelling, folded laundry that meets him at his bedroom door each Friday night.  He had never met the dirty, foul-smelling and funky looking clothing that meets my hands before that delivery.  Justin and I spent an entire evening devoted to the art of zen.  He sorted, measured, switched, hung and folded.  He handled “delicates” though not with the utter glee that I have as the clean piles get higher.  He passed with flying colors and was promoted to apprentice before the next day. 

Packing was no small task.  Between the list that the University gave and the overwhelming amount of clothing that Justin required for every situation possible, we were two suitcases heavy, a kickback amp, bass guitar, cables, mixer, fans, tennis rackets, books, laptop and backpacks…..we were full and ready.  Let me tell you, he did none of the packing.  Not a first for him or myself.  Even his sister, Darien helped.  Justin needed a flashlight and none could be found, so she ran to her room and brought down her favorite flashlight given to her many years ago.  This was packed right in with the rest of his gear and it sits on his desk, very smartly.  It is blue and mumbles the sounds of a hippo when you use it.  If you look in the picture below, you can see it sitting there in all it’s cuteness.

The real firsts began once we hit campus.  Cornell had check in at the dorm down to a science and my stomach kind of hated it.  Every move we made toward getting him comfortable in Mary Donlon, the more I knew I was on the way out.  I’ve never felt so lost so quickly before.  Justin was more and more excited as the minutes ticked by.  We ate in our first cafeteria, activated the laundry card and carefully made sure we made it to Bailey Hall at 2:00 pm for the first lecture.

Mary Donlon 606!

During the next two hours we were introduced to TA’s, RCA’s, Dorm Hall Leaders, Summer College Director’s and most importantly, the Dean.  If Justin choses to go to Cornell after high school, I am hoping that he choses American History as an elective and somehow is fortunate enough to have this man teach him.  His convocation was enlightening, funny, engaging and more than informative.  He was truthful, compassionate and stern when he felt words needed to be told firmly.  He spoke to the parents first and told us we had one role:  

To Leave.

At first my heart physically jumped and then thundered as all the 750+ students in the room cheered and clapped, including my son.  Then I collapsed inside and fell as I watched my son smile from ear to ear with great satisfaction.  I felt his elbow in my side as he jabbed me jokingly.  I sucked it up.  I listened to the Dean.  I listened and learned some first’s.  I had to learn that:

Justin would be fine – Justin was here because of great parents like all of us in the room – Justin would be cared for and taught and they at Cornell would remember that Justin was in fact, 17 - We parents would have great parental substitutes who would allow the students to grow and set them straight when they needed it.  I learned I had to let him go.  I did that once before in my life and regretted it ever since.  I was hoping today I would not be filled with that same regret.

The Dean would then direct his talk to the students, where he encouraged them to do what they came there to do.  For in fact, this would look really great on their résumé, or really bad, depending on the decisions they made during their stay.  He made a point to encourage them to study and do their work during the day.  Studies have proven that this strategy works.  Then, those that studied and finished their work could tempt those weaker to go out at night, which would lead to poorer decisions for the others, lower grades for the night timers and they would get a 2 for 1.  Ah Capitalism at it’s best. 

It was probably the best 20 minute speech I have heard in years.  I know the students walked away with great respect for him as did we, the parents.  Each group then broke out to meet their individual Professors and TA’s and we finished the time grabbing papers and getting back to the dorm for last goodbye’s.  I really don’t remember much of the last few moments I had with Justin.  I was concentrating intently on trying to be sober in my sorrow that I know I hugged him and I soon left him to his new room-mate, Dan and what would surely be the time of his life.

I spent the night with a great friend, who kept my mind off of the pain I was feeling inside and we ate, drank a little and walked and more importantly, talked.  We used a map, not a GPS to find our way to Lake Cayuga and watched the sun as it was beginning to set on the first of many new days I would have in my life.  We spent the evening with that map shopping and spending a night I wont forget for some time.  I don’t remember falling asleep, though I know I did.  Thank you, Sheri.  Once again you were there during a time in my life when I needed you most.  Someday I hope to be there for you, in a time that you need me like that. 

The next morning, we drove one last time to the dorm to drop off a forgotten item to Justin and to see him one more time.  I’m not quite sure what I was thinking he would be like: maybe miserable, sad…take me home…..etc.  He was handsome, showered and visibly very happy and very grown up.  Though I know he didn’t want to, he let me hug him one more time before I went on my way and walked back into his dorm.  I hugged Sheri, and we both drove away in opposite directions.  The drive home was long and sad and tears came when I didn’t expect them to but I wasnt filled with regret this time.  I was filled with sadness of just missing him.  Fear that he would get hurt.  Pride that he was in the middle of an Ivy League school getting a terrific education and he WANTED to spend his summer studying about the beginning of medical history.

Since this day of firsts, Justin has had many…his first 2:30 am pizza with friends on Saturday…his first 3 hour lecture with notes on a SUNDAY, his first RCA meeting and check in at midnight.  His first lecture with his medical Professor on Monday and his first paper due Friday, worth 25% of his grade.  To my knowledge he is dutifully working on it now, during daylight so that he can take Dan and crew out later when they need to be doing theirs….

The First Lecture

If you are wondering how he is doing now?  He is tremendous and happy and having the summer of his life. Me?  I’m holding my cell phone in my hands waiting for that call that will come sometime each night.  For now it is holding me over.  There will never be anything like having him here.  One thing is different this time. I have no regrets, another first.

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And there was, Pocono


Sometimes, the best part of a vacation is the excitement of getting away and packing and watching the children as they count down the days to the real vacation.  When your children get older, it changes to a feeling of just relaxing and getting away from the daily grind for a few days.  For my family, it’s about racing, our passion, the food and the people.

This year was a little different.  My oldest two children didn’t come with us for the first part of the vacation.  One was working and the other was prepping for five Regent’s exams.  They stayed home.  Though it was quiet, it gave both my husband and myself a new and different outlook on our lives.  This is what it is going to be like soon and our children are growing up and moving forward.  They would come for the last half of our racing vacation and we would enjoy them, but we were thrilled that they had confidence in themselves to do what they needed and wanted to do too.

We packed light, even ate light those first two days and just relaxed, biking with the little one occasionally.  We spent time catching up with friends that we spend our racing vacations with and their children.  The weather was great, though we knew it would change come Saturday.  When Jordan and Justin finally got there, so did the rain.  Jordan hung out inside the motor coach while we tried to stick it out on the outside.  That all ended at about 3:30 pm on Saturday, when we all headed indoors.

Dominos!

This is where our weekend really kicked in to high gear and the most fun.  We sat there and played Uno and Dominos for hours, literally hours.  We laughed and plotted and had the best time just being together as a family.  We heard the rain on the roof with the sound of others around us trying to stick out the weather, but we were in our pod for about 12 hours and it was tremendous.  I didn’t read.  They didn’t nap.  We never turned on the television, even though we had picked out a movie.  If we would have brought Risk, we would have stayed up all night.

When we did finally go to bed, we were beat and happy and teasing each other about who won and who lost and who blocked who on the last turn.  Usually, this isn’t how the Pocono weekends roll with us.  We are usually outside by a fire, roasted a marshmallow or making fire pies or watching the tape delayed Arca Race.  The fireworks never went off and there were only a few weekend diehards outside trying to make the best of the situation…and we didn’t care.  It was as if we were the only ones there for that one night.  Our kids were not grown, just our kids. I think we even felt younger too. 

When we all got up on Sunday morning, it was race day.  We went back into race mode and set up the outdoor racing sitting area and while I grilled chicken and peppers, along with dogs and brats for the kids, we watched Jeff Gordon race to victory and our favorite, Tony Stewart lose a gear late in the race.  We cheered, laughed and hoped for Jimmie Johnson to crash and the night before was gone like the rain.  Or was it. 

Justin received his first of three very large college books when we arrived home last night and will be spending the next two weeks reading it before he gets to Cornell.  Jordan will be working a tight schedule and very busy and Darien will begin her six weeks of Theatre.  I am going to secretly stash that box of Uno cards right on the card table in the living room and see who will be the first person to notice it and ask to play…

In all of this I realized that our game night that we used to have stopped for a while.  We all agreed that we are going to bring it back.  We have such limited time with each other as it is, we might as well make it really fun when we can.  Now I gotta go find the Boce Ball set, the most awesome Badminton rackets and regular deck of cards to teach and reteach them Hearts, the best game ever in the world. 

The Pringle Quack

Just look at these faces.  I was dealing cards and they were Pringle Quacking.  Shortly after this was taken, I made Darien move to Justin’s seat, therefore he saw the wrath of my Uno prowess instead of his sister.  Life is good.

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Something Old Leaves Town….


Through your darkest hours, as a cancer patient, you never think you will hear the words that you are healthy.  You dream about it.  You wish it every day.  You walk in walks.  You hit the “like” button on every stance to fight cancer for those fighting and those who bravely lost the fight.

I’ve been there all too many times and in the past week have had the blood work and this morning, the all-telling ultrasound.  As they goop you up from place to place and press on your throat, you worry.  It seems to take forever.  Mine certainly did.  The blood work last week which was not that impressive was worrisome and I have felt awful with a cold, so I really wasn’t expecting the best this morning.

There I laid, going through the steps I’ve done at least five times before.  The technician, very quiet continued to work through her paces.  Film after film, click after click.  I start some small talk which was quickly stopped because it moves the part of my body that she needs to take pictures of.  Suddenly she stops and turns on the light.  Certain that she was getting the doctor, I panicked.  She quickly touched my arm and told me she ran out of film and needed to find some more.

The beads of sweat were obvious and noticeable and once the new roll was loaded, we continued for about four more minutes, checking both lobes, the nodules on them and the glands nearby.  Every second seemed like hours.  She smiled down and told me we were finished and apologized for the long scan.  She stated that the nodules were all so small that she had a very hard time measuring them.

If you are in my world, that was enough for me to know that I could breathe today.  The nodules were the smallest they have been in five years and there was no way they were toxic.  They were so small and my thyroid so non-existent and that was the reason I have felt so awful.  I have no hormone in my system and my current medication was not at a level to support it synthetically.

So not only was I not having a problem, I was REALLY not having a problem and I was hugged and given better medication to help regulate my new body.  Of all days to forget my Blackberry, I forgot it.  I rode home from the Doctor in silence, not quite knowing how to feel.  There was no place in my body that had any cancer, pre-cancer or thoughts of cancer.  I drove a little too fast and a little too crazy, but I did get home and told the family.

I called my parents and sat down to blog it for everyone.  Feelings from someone who is chronically sick change on an ill to ill basis and for me, I’m looking forward to having a summer with no worries, playing kickball and swimming.  I have no checkups now for four months, so that puts me into a good place.

It’s hard for me to celebrate completely because I know too many people, family and friends who are receiving the news I didn’t receive today.  My sense of joy is their sense of dread.  My brightest moment is their darkest.  It is also a fleeting moment, for there have been two other times that I have felt this moment only for the onslaught of the monster to return. 

For the next four months, I will be happy and will not think about my body.  I will cry tears of course, but tears for different reasons.  I will garden and fish.  I will work my tail off to lose ten more pounds.  I will soak up the love of my son and daughters.  I will hold the hands of those who lose someone to cancer.  I will remind myself every single day how I felt right this very moment.

Something old has left town and I am hoping it stays away for good.

Today, I am cancer free.

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Totally Stolen…


Quantcast

A blogging friend of mine found this fun, ongoing meme called “Unconscious Mutterings“. A new list of words is posted every week for an ongoing exercise in free association. She said, Apparently, over time, this technique is supposed to help recover repressed thoughts and feelings that one can then work through to gain a better sense of self. But, I thought I’d try it as just another random way for me to get the words out of my head and onto the blog on a more regular base. Perhaps another source of inspiration? And hey, I could always use some self discovery. We shall see. 

What do you come up with first?

 

She did two lists of word association at one time, and asked us fellow bloggers to do the same.  I saw it as a challenge to go deep within myself, close my eyes (well not really, because I couldn’t see the original word then) and see what I come up with.  Here goes…

Week #433:

  1. Code :: Computers, Brainiac, Geek
  2. Brothers :: Pedophile, Damaged, Brain Donation
  3. Immigration :: Problematic, Red Tape, Speak ENGLISH
  4. Heavy :: Old, diet
  5. Bracket :: keyboard function, Basketball
  6. Murder :: Attempted or Real, Could I Get Away With It, 90% do
  7. Neighbor :: Noisy, Unseen, No children
  8. Collar :: Bone, Broken, 80′s turn-up
  9. Onslaught :: Daily Schedule, Cancer
  10. Eyebrows :: gone

Week #432:

  1. Trumpet :: Annoying, Loud
  2. Love :: My house, children, husband
  3. Routine :: What the hell is that, Blackberry, Mayhem
  4. Infringe :: Parents, Schedules, Cancer
  5. Misgivings :: Regrets, Many
  6. Establish :: Create, ADD
  7. Stupefy :: Smart, Amazing
  8. Constipate :: Remedies, Xlax, Great prank
  9. Conjure :: uhh….hrmmm
  10. Miscellaneous :: Everything else,

As Ally said, “Go on … give it a whirl. You know you want to!”

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Just For Kicks…but don’t kick me


I heard the greatest news last week.  My son played kickball at school!  Why was this great news?  He is a junior in high school, not an athlete and likes table tennis over baseball.  He was also excited about this game to the point where he gave me the in’s and outs of how they played it, who won and how he couldn’t wait to play it again.  What was the great excitement over kickball? 

Who is up for it!

 
 
 
 
 
 
 
 
 
 
 
 
 
He called it African Long Base and it was Co-Ed.  Teams were in heated battle and the rules were different from when he was a “kid”  You still got three strikes.  You still kicked the ball.  But you could kick it ANYWHERE.  There was no out-of-bounds.  You could even kick the ball behind you.  There was a short base and a long base.  Once you kick the ball, you run to the short or long base and if you can, home.  If you have to stay on base, no problem.  You can have multiple people on base.  The problem is, once you have one kicker left, you all better run. 
 
So, its kickball with strategy.  If you are in the outfield, you better have players to the left, right, behind home base and up the opponents skirts if you want to win.  You don’t have to be the fastest or hardest kicker, just the best faker you can be.  Placing the ball is key to getting people home.
 
I have decided that if he can do it, we can do it!  It’s a way to learn about games from other countries and get a little exercise too.  Veteran’s field is calling us ladies and germs.  Who is in for a game of African Long Base?  I am. 
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